top of page

The Canadian PKU Registry

*You will be redirected to the NORD website

(signing up has to be done by a caregiver)

About The Canadian PKU Registry

Welcome to The Canadian PKU Registry website! This website has information on the patient registry and how to join.

At this time, to be eligible to participate, patients must have a diagnosis of phenylketonuria (PKU), be receiving health care in Canada, and be 18 years old or younger (signing up has to be done by a caregiver).

Learn about The Canadian PKU Registry

Who can join The Canadian PKU Registry and what to expect

Join The Canadian PKU Registry

 Login to The Canadian PKU Registry

bottom of page